Beatrix Hoffman

Patients as Policy Actors - Critical Issues in Health and Medicine Series Beatrix Hoffman

Jacket Description/Flap: Patients as Policy Actors offers groundbreaking accounts of one of the health field's most important developments of the last fifty years--the rise of more consciously patient-centered care and policymaking. The authors in this volume illustrate, from multiple disciplinary perspectives, the unexpected ways that patients can matter as both agents and objects of health care policy yet nonetheless too often remain silent, silenced, misrepresented, or ignored. Review Quotes: "Despite all of the recent study of patient activism, there has been little attempt to synthesize its achievements and limitations--making the scholarship as fragmented as the activism itself. "Patients as Policy Actors" fills this void. It should be required reading for anyone interested in how individual patients might mobilize together to help effect meaningful health care reform in the United States."--Barron H. Lerner, MD, PhD"When Illness Goes Public: Celebrity Patients and How We Look at Medicine" (01/01/2099) Review Quotes: "This strong volume brings together contributors of different disciplinary and experiential backgrounds, broadening our understanding of how patient voices influence American health care policy."--Elizabeth Toon"University of Manchester" (08/25/2010) Biographical Note: Beatrix Hoffman is an associate professor and chair of the department of history at Northern Illinois Unversity. She is author of "The Wages of Sickness: The Politics of Health Insurance in Progressive America." Nancy Tomes is a professor in the history department at Stony Brook University. She is the author of several books, among them, "The Gospel of Germs: Men, Women, and the Microbe in American Life." Rachel Grob is scholar in residence and director of national initiatives at the Center for Patient Partnerships, University of Wisconsin-Madison and healthy advocacy faculty member at Sarah Lawrence College. She is author of "Testing Baby: The Transformation of New Born Screening," "Parenting, and Policymaking "(Rutgers Press, forthcoming). Mark Schlesinger is a professor of health policy and a fellow of the Institution for Social and Policy Studies at Yale University and past editor of the "Journal of Health Policy, Politics and Law."Table of Contents: Introduction: Patients as Policy Actors, by Nancy Tomes and Beatrix Hoffman Part I. Voices of the Silent1. Solitary Advocates: The Severely Brain Injured and Their Surrogates, by Joseph J. Fins and Jennifer Hersh2. Physician-Patient Communication in the Care of Vulnerable Populations: The Patient's Voice in Interpersonal Policy, by M. Robin DiMatteo, Kelly B. Haskard-Zolnierek, Summer L. Williams, and Desiree Despues3. Is It Time to Push Yet? The Challenges to Advocacy in U. S. Childbirth, by Elizabeth Mitchell Armstrong and Eugene Declercq4. A Pound of Flesh: Patient Legal Action for Human Research Protections in the Biotech Age, by Lori Andrews and Julie Burger Chronis Part 2. From Individual to Collective5. From Outsiders to Insiders: The Consumer-Survivor Movement and Its Impact on U. S. Mental Health Policy, by Nancy Tomes6. "Don't Scream Alone" The Health Care Activism of Poor Americans in the 1970s, by Beatrix Hoffman7. The Canary in the Gemeinschaft: Using the Public Voice of Patients to Enhance Health System Performance, by Mark Schlesinger8. Patient Appeals as Policy Disputes: Individual and Collective Action in Managed Care, by Marc A. Rodwin Part 3. How Patients Matter9. The Power of Us: A New Approach to Advocacy for Rare Cancers, by Amy Dockser Marcus10. Patients and the Rise of the Nurse-Practitioner Profession, by Julie Fairman11. A House on Fire: Newborn Screening, Parents' Advocacy, and the Discourse of Urgency, by Rachel Grob12. Measuring Success: Scientific, Institutional, and Cultural Effects on Patient Advocacy, by Steven EpsteinEpilogue: Principles for Engaging Patients in U. S. Health Care and Policy, by Rachel Grob and Mark Schlesinger Notes on ContributorsIndex Marc Notes: Includes bibliographical references and index. Review Citations:

Chronicle of Higher Education 09/09/2011 pg. 17 (EAN 9780813550503, Hardcover)

Choice 01/01/2012 (EAN 9780813550503, Hardcover)

Choice 01/01/2012 (EAN 9780813550510, Paperback)

Contributor Bio:  Hoffman, Beatrix Beatrix Hoffman is assistant professor of history at Northern Illinois University in DeKalb. Contributor Bio:  Tomes, Nancy Nancy Tomes is professor of history at Stony Brook University and author of "The Gospel of Germs: Men, Women, and the Microbe in American Life". Contributor Bio:  Grob, Rachel Rachel Grob is an associate dean of graduate studies, director of the Child Development Institute and healthy advocacy faculty member at Sarah Lawrence College. She is author of Testing Baby: The Transformation of New Born Screening, Parenting, and Policymaking (Rutgers Press, forthcomingContributor Bio:  Schlesinger, Mark Mark Schlesinger is a professor of health policyand a fellow of the Institution for Social and Policy Studies at Yale University and past editor of the Journal of Health Policy, Politics and Law